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To save the parents money, this diabetic teens reduce their insulin

Secondary school came out with the idea: a third would reduce insulin.

Dillon, who has type 1 diabetes, is supposed to keep the blood sugar level between 130 and 150. After he started to deliver insulin, his levels jumped to 300.

He knew he was dangerously tall and he thought in his mind he could go into a diabetic coma. "I did not want to think properly, but my parents work hard to give me what I need, and I want to give them more financial burdens," Dillon said, now 18 years old.

From 2012 to 2016, insulin costs for people with type 1 diabetes almost doubled, from $ 2,864 per year to $ 5,705, according to a study this month from the Institute for Health Care, a nonprofit research institute.

The cost of Dillon's insulin was much higher. He was insured last year thanks to his father's work at a steel mill in Utah. When Dillon began distributing his insulin, the mill was just switching to a high-deductible insurance plan, which meant that his parents would have to pay $ 5,000 from his own pocket before the insurance began.

As part of this new insurance, Hooleys had to pay $ 800 a month for Dillon's insulin instead of $ 60 a month that they paid for their old plan.

Dillon's father, Jason Hooley, was busy with his family's financial troubles and worked, not to notice that a 400-pound steel beam hit his middle finger. He lost half his finger and managed to work only slightly in the mill. With his lessons, he cut $ 300 a week less.

That's when Dillon secretly began to reduce his insulin. His parents found out that he had come to the doctor's office and the doctor was shocked by his high blood sugar.

Dillon's father then switched his job twice to get better health insurance. Now the family pays $ 160 a month for insulin, which is better than $ 800 a month, but it's still a financial need for a family of five. Dillon returned to taking full doses of insulin under the watchful eye of his mother.

Mindie Hooley yells when she thinks her son helped her parents.

"He's such a ruthless person," she said. "My heart has just broken because you want to do everything to protect it, but protect us."

Promises from legislators

Some people with diabetes did not survive the rising cost of insulin.

In 2017, 22-year-old Antavia Worsham of Cincinatti died when she could not afford her insulin.

Her mother, Antroinette Worsham, testified on Capitol Hill on Tuesday for the Committee on Supervision and Reform. The Senate Committee also held a hearing on raising drug prices.

"This is unacceptable and I am going to get to the end of insulin price growth," said Charles Grassley, chairman of the Senate Finance Committee.

Trump's drug price ad contains a huge gap, researchers say

The pharmaceutical industry says that patients with insurance such as Hooleys would not have to pay the full price because insulins give insurers profound discounts. "These savings are often not shared with patients whose spending on pockets continues to increase," said Holly Campell, spokesperson for pharmaceutical research and manufacturers in America.

But the insurer's spokeswoman said it was not true. "Savings from rebates go directly to customers," said Cathryn Donaldson, a spokesman for US health insurance companies.

In December 2016, senator Bernie Sanders of Vermont and a representative of Elijah Cummings of Maryland asked the Department of Justice and the Federal Trade Commission to find out whether insulin manufacturers agreed on drug prices.

In October, the Prosecutor General's office in Minnesota filed a lawsuit against insulin producers about unlawful pricing practices. A law passed by patients with diabetes in Massachusetts, which blames the price-fixing insulin manufacturer, is being discussed at a federal court.

Dillon's future

While drugs and insurers show their fingers, Hooleys are still struggling to pay $ 160 a month for Dillon's insulin along with other supplies like test strips.

Paying insulin made it impossible for Dillon's parents to save enough energy to buy him a glucose monitor that gives an alarm if his blood sugar gets too low while sleeping.

They know he needs one. Last month, his mother looked at him as he slept and saw that he did not look right. She woke him up and gave him some honey, but he was so confused with low blood sugar that he smelled honey all over his body instead of eating it.

The nurse brought him emergency room, where she was stabilized and released.

After graduating from high school last May, Dillon wanted to go to school to become a nurse or respiratory therapist. Instead, he got a job at a factory where his father works to help pay for his insulin and save himself at school.

He looks at his two and a half months of insulin dosing and knows he made the wrong choice – but it was the choice that was brought out of love.

"My parents are doing so for me, and it's so hard to watch them financially," he said. "I felt helpless that I could not contribute."

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