After several weeks of discussion over children with congenital malformations, representatives of the Ministry of Health, ANSES and the public health of France explain.
Two months after the meditation of several cases of inexplicable congenital malformations, the Ministry of Health wants to end the dispute and show that it has accepted the level of emotions raised by the case. "We are fully mobilized to respond to the concerns and issues faced by families," said Health Director General Jerome Salomon on Thursday, November 15, and presented a renewed research plan to try to identify the causes of the phenomenon. "We will do everything in our power to try to understand," he added.
On 4 October, under pressure from journalists, the Public Health Agency in France (SPF) published three abnormal birth reports, children without hand, arm or forearm in Loire-Atlantique. (3 cases in 2007-2008), Morbihan (4 cases between 2011 and 2013) and Ain (8 cases between 2009 and 2014). In all three cases, the SPF explained, research conducted with families to determine the possible common cause was unsuccessful and the investigation was dismissed. Recognition difficult to understand for the general public and unacceptable for families.
Answer the questions
At the request of the Minister of Health, this work will now be restored. The DG for Health has outlined how the SPF and the National Agency for Food Safety, Environment and Work (ANSES) will work with a "cross-check". The committee, commissioned by an independent and "high-level" scientific figure, will be in charge of investigating new hypotheses that are likely to explain the occurrence of these malformations. In particular, they may be genetic, infectious, medicinal or environmental.
For this purpose, scientists will systematically radar French and international scientific literature. An epidemiological surveillance database for animal health will also be consulted in the case of viruses that can be worn by humans. A milestone will take place in January, before a final report is expected on June 30.
Weaknesses of the current system
At national level, "the number of inborn malformations is stable over time," says Professor Jérôme Salomon. The rate of abnormality caused by environmental causes is estimated at 10% and 20% on the genetic factor. But in half of them, malformations have no known cause, according to the Remery study, the registry that alerted Ain. "There are still many unknowns in this new field of research, which is the environment," says Professor Salomon.
Deposit Guarantee Schemes promise that families, supervisors and healthcare professionals will be regularly informed and associated with a new survey. While warning: "Maybe we can not answer and then be disappointed."
Another project announced Thursday, strengthening the monitoring system and warning of congenital malformations. The case highlighted the weaknesses of the current system (six registers, often financially fragile, covering only 19% of the territory). Physicians (pediatricians, pediatricians, ultrasound, etc.) They will soon be encouraged by a circle to report the case of transverse agenesis of the upper limbs. It is also considered to create a new register in the New Wine Region of Wine. The dormitory is waiting for funding from the authorities.
As for Remera, which has begun a warning and condemned the poor reactivity of health authorities, its existence does not appear to be endangered. Its funding is secured, promised prof. Salomon, apparently trying to offset the differences. Health authorities entrusted Emmanuel Amar with the task of verifying the ten suspected cases found in the hospital database.
See also – Agnès Buzyn on Unborn Unborn: "I asked for the first state report for January 31"
Agnès Buzyn on Unborn Children: "I asked for the first state report on January 31" – Look at Figaro Live