A child born with an extremely rare condition remains after the skull operation in the shape of a devil's horn to reduce the pressure on his brain.
Clyne Solane, a 22-month-old child from the Philippines, was born with a condition called hydranencephaly, which meant he had a small brain and a skull full of fluid.
Clyne underwent surgery in March to relieve pressure on his brain, but due to complications with the operating parts of his skull he collapsed in places where his brain did not create. The result was a deformed skull with raised ridges that resembled the evil horns.
Since then, this has become more prominent, and now Clyne has to undergo a larger operation at the Philippine Children's Medical Center in Pasig to reconstruct the shape of his skull. Complications of Clyn's condition posed a serious risk to a free mother, Justine Gatarin, 21, who says she feels she is too weak to survive another surgery.
"I do not want to continue because I'm afraid my baby is still not strong enough, "Said Gatarin Daily Mail."That's why I have a hard decision. If we do not, his head looks like this for the rest of his life. "
"Some people say his head resembles the devil's horns, but there is no doubt that he is an angel. It breaks my heart to suffer him, "She added.
Hydranencephalides are extremely rare diseases that develop during pregnancy and prevent the complete development of the child's brain and also cause their head to grow in size. An irreparable situation can cause disability, intellectual problems, seizures, and impaired vision. Clyne needs breathing and has to be powered by a tube.
The family and friends of Clyne and his mother use social media to obtain the necessary funds for medical expenses for toddlers. Justine said that the family had sold most of her property to pay for the surgery, but his extra medical care is expensive.
READ MORE: The world's first implant transplant head – Italian surgeon
"We sold almost everything we own to have enough money for surgery. But even after surgery, we have to return to the hospital regularly," she said.
"The chest tube that allows him to breathe must be replaced every six months. I find it sad to see my child suffer like this. "
Justine says she is promising that Clyne will live as a teen as it was in the past with other children who were born with this condition. It is unusual for those born with hydranencephaly to live in adulthood – in fact, most die in the womb or in the months after birth. Although the exact causes of the hydranencephaly are unknown, it is assumed to be a congenital disorder, according to the National Organization for Rare Disorders.
Like this story? Share with a friend!